Become an active voice in your oncology treatment
A cancer diagnosis is life-changing, often bringing uncertainty. However, patients who actively engage in their care—researching options, collaborating with their healthcare team and advocating for their needs—can significantly impact their treatment journey. Personalized medicine, incorporating genetic profiling, targeted therapies and patient-driven decision-making, empowers individuals to improve outcomes and enhance their quality of life.
“Self-advocacy is a process of internalizing skills and resources to act in a way that support survivor’s needs and goals”
Self-Advocacy and Cancer: A Concept Analysis, Journal of Advanced Nursing
“Self-advocates hold an underlying sense of empowerment…”
Self-Advocacy and Cancer: A Concept Analysis: Identifying All Uses of the Concept, Journal of Advanced Nursing
The Benefits of Engagement
Custom Care
Patients who engage with the treatment process will be an active part of creating a personalized treatment plan that accounts for all aspects of a patient’s concerns. Lifestyle, outcomes, experience and side effects are all examples of topics that can be discussed and addressed through a dialogue between provider and patient.
Time Management
Timing is very important in oncology. Reduced delays in treatment and support can result in better outcomes. Consequently, patients should come to their appointments with knowledge, treatment questions and a willingness to listen. This will will use consultation more effectively, resulting in an a possible accelerated treatment start.
Patient Empowerment
A cancer diagnosis and subsequent treatment can result in patients feeling that their autonomy has been stripped away. However, patients who are an active member of the treatment team have the opportunity to gain control and self-determination.
How to be an Engaged Patient
Seek Education
Enhance health literacy
Improve understanding of medical terms and treatment processes by requesting simplified explanations.
Use reliable resources
Request verifiable information when learning about your diagnosis and treatment. Avoid unverified speculation.
Know your options
Ask about all treatment options and the associated pros and cons. This will allow you to make an informed decision.
Active Engagement & Support
Engage during appointments
Always voice feedback to your provider about confusion, anxiety or symptoms you are experiencing.
Involve trusted partners
Bring a loved one or trusted friend to appointments for emotional support and help in retaining information.
Use Resources
Take time to review and use any support services such as patient navigators, nutrionists, financial assistance, and educational options.
Personalized Care & Communication
Find compatibility
Inquire with your PCP and insurance company to find a provider who aligns with your cultural and linguistic needs.
Share lifestyle details
Be forthcoming in sharing your health history and lifestyle as even small things may have an influence on your treatment journey.
Engage beyond treatment
Focus on overall health, including physical, emotional, and mental aspects, by integrating activities such as exercise, counseling and meditation.